DEGETHA & FRIENDS
German Society of Thalassemia
and all rare diseases
Our association was founded in 2014. The founding members as well as all active members are made up of those affected and non-affected.
The special thing about DEGETHA & FRIENDS is that
- the association acts as an international contact for Mental Health in Rare Diseases
- the board consists of at least 50% of those affected
- the active members of the association contribute many different professional qualifications to the volunteer work
- a member of the association as a doctor (hematology) authentically supports DEGETHA & FRIENDS, since he himself was born with a rare disease
The Team
Dr. Mohammed “Miso” El Missiry
Thalassaemia Advisor
Stella Pelteki
Member of the Board
Nicola De Nittis
Member of the Board
Ivonne Pachaly
Advisory Board
Anonymous
Why is “Anonymous” here? – learn more
Roberto Podda
Advisory Board
Reem Ghazzal
Patient Advocate
Josephine Bila
Patient Advocate
Nastaran Zarnegari
Marketing
