
DEGETHA & FRIENDS
German Society of Thalassemia
and all rare diseases
Our association was founded in 2014. The founding members as well as all active members are made up of those affected and non-affected.
The special thing about DEGETHA & FRIENDS is that
- the association acts as an international contact for Mental Health in Rare Diseases
- the board consists of at least 50% of those affected
- the active members of the association contribute many different professional qualifications to the volunteer work
- a member of the association as a doctor (hematology) authentically supports DEGETHA & FRIENDS, since he himself was born with a rare disease
The Team

Dr. Mohammed “Miso” El Missiry
Thalassaemia Advisor

Stella Pelteki
Member of the Board

Nicola De Nittis
Member of the Board

Ivonne Pachaly
Advisory Board

Anonymous
Why is “Anonymous” here? – learn more

Roberto Podda
Advisory Board

Reem Ghazzal
Patient Advocate

Josephine Bila
Patient Advocate

Nastaran Zarnegari
Marketing