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DEGETHA & FRIENDS
GERMAN SOCIETY FOR THALASSEMIA AND ALL RARE DISEASES (RD)
Our association was founded in 2014. The founding members and all active members are made up of affected and non-affected people.
What is special about DEGETHA & FRIENDS is that
the association acts as an international point of contact for mental health in rare diseases.
at least 50% of the board is made up of those affected.
the active members of the association bring many different professional qualifications to their voluntary work.
one member of the association is a doctor (hematologist) who authentically supports DEGETHA & FRIENDS, as he himself was born with a rare disease.
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We provide support, advice, and training for ALL rare diseases.
OUR TEAM
Dr. Mohammed „Miso“ El Missiry
Thalassemia Consultant
Nicola De Nittis
Member of the board
Stella Pelteki
Member of the board
Ivonne Pachaly
Advisory Board
Gianni Manfredonia
Advisory Board
Patient Advocate
Josephine Bila
Patient Advocate
Why does it “Anonymous” ?
